I had THE most amazing trip to New York City thanks to Make A Wish, Macy's, and The Early Show. I can't wait to tell you all about it (in detail), but first I wanted to tell you about my messy kitchen.
It's 1:30 am and I just finished making fudge. Let's just say it seemed like everything that could have went wrong did. I decided to make a double batch, but I used too small of a pan. It took so long to boil, and then when it did start boiling it bubbled over and was going everywhere. You know how good burnt sugar smells, right? So, mid boil I have to switch pans. I also had to unwrap my sticks of butter and ingredients while continuously stirring, my arm was aching. I was determined not to burn it. Anyway, I was annoyed, trying to think of a way to explain to my Mom why her kitchen looked like this when I got a text message. My Mom had text me "Happy Birthday!" I had completely forgotten. When you have a transplant they consider the day of your transplant to be your second birthday because it's your second chance at life; a new beginning. I had my transplant two years ago today.
I have been a little aggravated about my medical situation since I got back from New York. Everything surrounding school and raising awareness has been amazing, but I am struggling with graft vs. host disease. I've tried tapering my medication four times and it feels never ending. One unsuccessful taper and flare of GVHD after the other. It feels like taking a step back when I am so ready to move forward. I am always thankful, but somewhere along the way I got caught up in my "messy kitchen" of life and forgot that regardless of the GVHD, I wake up every morning and get to live my life. Two years ago, I didn't know if I would make it to be 18, if I'd get to go to college, or even if my hair would grow back!
And today, here I am, sitting in a messy kitchen with short brown hair thanking God for the past two years of miracles.
Also, I want to say thank you all for your continuous love, prayers, and support over the past few years. You have been by my side every step of the way.