Thursday, October 7, 2010


I went MIA. I didn't answer texts, e-mails, or calls. I was anti-technology for about a week. I just rested after the 29th. I wanted to say thank you again! I am still on cloud nine about the "E-mail Oprah" campaign. I am currently working on putting all of the pics and video on the website, please e-mail me if you have any more pictures! I will let you know when it is up. Oprah hasn't called yet. I have faith she will call one of these days.

Thank you for all of the birthday love! Wednesday was great! My friend, Chelsey Smith, sang me "The Climb". She has an amazing voice. We had a very festive, pink and black birthday dinner at Gamie's. It was absolutely beautiful. Last but not least, my friend Melissa, cut off 18 inches of her hair and donated it to Locks of Love in my honor. How special is that! If you click HERE you can watch the KTAR interview from Monday morning. They raised over one million dollars for Phoenix Children's Hospital, a hospital that has changed my life!

My labs are all good. Only four weeks left on the Cyclosporine! We are trying to get me off of the magnesium and nightly infusion as well. I am on a Caprisun kick and attempting to drink as many as I can! The sooner we get off the Cyclosporine, the less I need the Magnesium, which means I don't need the nightly infusion, and finally results in removal of my Broviac. I cannot wait for the day I can get in the shower without having to protect my Broviac. That is a beautiful thought.

I have to get a flu shot this week, you would think that after giving myself shots three times daily (for a month) I would be used to needles, but no. The boys used to make me this deal when I was little that if I wouldn't cry, they would give me $5. I said "ow" and they called the deal off. Ryan and Allan, you should be expecting a call from my lawyer soon.

I GOT A HAIRCUT!!! Okay, a trim. It just looks cleaner now. My hair is starting to have a wave. I'm not sure what to think about it yet, but I'll let you know.


  1. Ceci: That is such good and encouraging news. I am glad you were able to get a break and take a little breather. You looked so calm and collected in the video clip amidst all the hustle and bustle (I need a few tips on how to do that). Your looking great, haircut and all. Keep climbing! joe

  2. I'm glad you had someone respresenting Arnett at your birthday party! (Wish it could have been me though;)
    We had a community supper on Wednesday for the baseball boys before they headed to the state tournament, and when Nick prayed before we ate, he prayed for you as well. This small town sure does love you, Ceci! And the baseball boys are some of your best prayer warriors!
    Love you lots!! Can't wait til Oprah calls!

  3. Good job on the interview! You spoke very well and you looked absolutely beautiful!!! You are so amazing---you are always helping others----maybe that's why you are sooooooo loved---you have such an unselfish spirit. I hear you are on a very strong antibiotic that makes you feel yukky----I'm so sorry----many of us will pray that the antibiotic will accomplish what it is supposed to and that you will feel much better in the process!!! I'm so glad you had a festive birthday---lots of people and lots of love makes special days even more special, huh? And, wow, what a friend to cut off 18 inches of her hair and donate it in your honor!!! I would like to hear Chelsea sing "The Climb", too!!! You have great friends!!! And those brothers of yours----just think how rich they are going to make you!!!! Much love, Kathy & Rexie

  4. Still thinking of u Ceci... and Happy Birthday.

    Even though I live so far away, it's nice to meet someone who is also on the same climb, and who is so positive. Go girl!

    Hope Oprah calls really soon.

    (((hugs))) xx Julie

  5. I love you! I love reading your blog when you say things like Im so excited to get off of this medication or pill... because it shows how hard you are fighting and how you are improving and I love the sound of that. All I have to say now is Oprah better call you back or she is missing out on the opportunity to talk to lovely wonderful magnificent young lady (thats you)!!!!!!!!!
    i see you i hear you i love you keep climbing!

  6. Happy Birthday, dear Ceci! What a climb you continue to have and what an inspiration you are to all of us. We love you! Yes, Oprah will call and you will continue to influence more and more. Keep up the great work. Hugs from WA! Richard and Tamara