Saturday, December 5, 2009

Red Headed and Ready

Yesterday, I also became very dizzy and I was transfused one unit of RBC's. It's gone from one extreme to the other. Extremely bored to extremely busy. Here's what my schedule looks like: this Tuesday morning we will go to Clinic and start a platelet drip. I will be admitted to the hospital for my biopsy, insertion of pick line, Lupron shot, and filter removal. I'll be observed over night and released Wednesday. Thursday afternoon both Ryan and I have a meeting with Dr. Adams and Dr. Salsburg. The rest of the weekend I'll be enjoying my own bed. On Sunday, the 14th, I will start anti-seizure and anti-rejection medicine. Monday, the 14th, I will receive a trial dose of Busulfan (chemo). Drum roll please... Tuesday I'll be admitted for the long haul.

Transplant is so close. Every time I even think about it a flood of emotions seem to take over.I feel like I've been working towards this next month all of my life. Although I've only been aware of it for two months. I think the hardest thing for me to process is that nine months in, this feels like it will be the last couple of months and MDS will be behind me. However; the recovery period following a transplant is 9-12 months. It will all depend on how my body handles the stem cells.

The blonde jokes end here. I cut and dyed my hair. In the first picture, Allan was outside hauling in wood and snuck in the shot.


  1. Grandpa & GammieDecember 6, 2009 at 8:02 PM

    Ceci....I am worn out just reading your blog, what a busy 2 weeks you will have; however we are still climbing!!!!Grandpa & I cant tell you how nice it is when you & your Mom come over, sit in your car & Gpa & I sit in lawn chairs & visit. To keep you germ free and to transplant that is the next best thing! G & G say: "Be patient enough to live one day at a time as Jesus taught us, letting yesterday go and leaving tomorrow until it arrives." We Love You!

  2. Gramdpa & GammieDecember 6, 2009 at 8:15 PM

    Ceci: I am tired just reading your blog. What a busy 2 weeks your family is going to have. You have been a great climber, and you know we are all right there with you. Grandpa & I love it when you and your Mom come over, sit in your car & G & I sit in lawn chairs & visit with you. To keep you germ free and to transplant it is the next best thing. G & G say "Be patient enough to live one day at a time as Jesus taught us,letting yesterday go & leaving tomorrow until it arrives."

  3. Your new hair color looks great! I hope someone is giving you education credits for all the knowledge you are gaining about human anatomy/physiology and medicine. You do such a great job explaining it! Thinking of you and your family as you move on to another step in your climb.

  4. You remind me so much of your Aunt Ro with your red hair!! :)

  5. Ceci,

    Good luck with everything!

    May God bless you throughout this process!

    Gary Lynch

  6. As I read each new blog, I am so proud of the person that you are. You amaze me and inspire me and my thoughts and prayers continue with you on your climb. You're getting so close to transplant! Keep being the beautiful positive girl that you are and "Just Believe".

  7. Ceci,

    Kennedy just saw a picture of your red hair and said..."Wow, mom she is beautiful!" " I wish I had red hair." Look at you, inspiring people in more ways than you know, even their hair color! Thinking of you and your family!!

    ~Mrs. Bray