Sunday, April 25, 2010

MVD, Meds & Mailing Lists

We have an appointment tomorrow morning at clinic. They want us to come more frequently because my levels are continuing to change. We are on the 5th day of the 25mg dose of steroids. Unfortunately we saw an increase in some of my liver enzymes. Not what we wanted, but when you remove medication it poses that threat. The other problem is that steroids also increase risk of infection. It's a double edged sword. Plus, my Tacro level was upped once again. Obviously it's disappointing because the higher you go the farther you have to come down. But I continue to remind myself that this is what is best. We want Ryan's feisty cells to get rid of all of the MDS. That's the logic behind the transplant! What I'm trying to say is that I'd rather have to deal with this than MDS. You can see my cheeks puff up a little. Just more to love. But I've lost three pounds. Go figure; eat more and weigh less. Beat that Jenny Craig.

I have some exciting news to share! They are considering letting me get my license. My permit is going to expire soon. I would have to show up at the DMV prior to opening, under no circumstances can I go inside, and lastly I will ask the instructor to wear a heavy duty mask and hand sanitizer. The reason I'm not yet jumping for joy is that I can get my license, but I'm not allowed to drive anywhere alone. Which is equivalent to um... having my permit? My Mom thinks they are budging. I don't consider it a huge push, but it's a start. I've been practicing my three point turns, parallel parking, etc. You think after eleven months with my permit I'd have it down! Otherwise; I'm trying to keep entertained with world studies, moisturizing, reading a Nicholas Sparks novel, avoiding germs, and of course; eating!

As I've mentioned over and over again; I am working on Ceci's Climb, the charity. If you would like to be added to the mailing list shoot me an e-mail at with your name and address. Let's prove to the world that it really is all about the climb.


  1. Well, don't you just look way cute in your summer dress and hat?! I'll be sending you an email soon to get on the Ceci's Climb mailing list. Good luck on your driver's test! Love you so much and pray for you nonstop! Jena

  2. You would still be the first in the group to get their license! (Not counting Kyler. Or Ben. Or Austin.) So, it looks like it's just us girls that are slackers . . . That seems backwards? I love your dress and hat combo :) It is adorable! Prayers, prayers, prayers always.
    With everlasting love,

  3. I just love your sense of humor.....keeps a person much happier, huh? You look so pretty in your cool dress and hat. I bet the hospital looks forward to getting to see you. I will pray that Ryan's cells stay fiesty! I, too, want to say "Thank You" to Southwest Airlines. It is such a blessing that they are family oriented! Good luck driving and testing!!! Much love, Kathy & Rexie

  4. Love your inspiration, your blog, your new dress, and would love to be added to Ceci's climb. We're grateful for all the positives in your life and REJOICE that you chose to focus on those--even with all the tough stuff around. Hugs from WA!

  5. Those darn hospitals. I agree it shouldn't revolve around them. Do they know you have a very busy schedule! I mean world history doesn't come naturally, the germs are very sneaky these days, and you cant put off eating anymore!! Hey I want to tell you something... I LOVE YOU! I know you can do it girl! You inspire so many :)